Wednesday, March 28, 2012

Howdy from TX!

Hello, All!
I just wanted to drop you a quick line/update to tell you how things are going.
Everyone at the clinic is really nice. I especially like the doctor who is heading up my case, Dr. Kubove, and the head oncologist, Dr. Yi. Both are very knowledgable and seem to really listen to my concerns and desires.
Yesterday was my first day at the clinic and they started me on PB (Sodium Phenybuterate) which is metabolized in the liver to become an antineoplastin, which fights cancer on a cellular level. Work with antineoplastins is what Dr. Burznynski is best known for. I am on a step therapy of PB.... Yesterday I took 1 pill every 3 hours, to equal 4 for the day. Today I am taking 2 pills every 3 hours.... tomorrow I will take 3, etc., on up to 6 pills every 3 hours, to equal 24 day if I can tolerate that much. We will find out what the best dose is for me.
Today, in addition to increasing the PB, we added Xeloda, a chemo drug. According to their treatment plan, I will be taking about half of the standard dose, because they believe it will be a theraputic amount, but less toxic. I expect to have to deal with burning skin sensations on my hands and feet, but should not really lose my hair or be very ill.
Tomorrow we will add another medication called Tykerb, which will help control the HER2Neu receptors on my cancer cells. This will probably have some side effects for me to cope with, as well, but I am willing to do what is needed.
I am optimistic about my care, and want to assure all of you that I am continuing to seek the Lord's guidance in everything I am doing. I trust Him completely, and know that He will lead me as I ask. I also know He has carried my burdens, and I have no reason to fear. He will make the load light upon my shoulders.
I am blessed.
Once again, I thank all of you who helped make this visit to the clinic possible. I am touched and grateful beyond measure.
More to come.


  1. I'm so proud of you Jenny!! Your attitude alone will get you far, and your trust in the Lord is key. You're doing everything right, I'm praying for you every day. Love you!


  2. Yea Jenny! I'm so glad you have took those steps to get this going, I just know you will kick this in the ASS! No pouting girl, you get this done!!

  3. Yay! So excited for you to be on this path! I love you!

  4. Hi,

    I have a quick question about your blog, would you mind emailing me when you get a chance?